National Research Summit on Dementia Care: Building Evidence for Services and Supports

Care giving summit


The National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and the Foundation for the National Institutes of Health through private sector support. The summit will take place at the National Institutes of Health’s William H. Natcher Building (Building #45) on October 16-17, 2017, in Bethesda, MD. The summit is free and open to the public. It will also be live streamed by videocast. The goal of this research summit is to identify what we know and what we need to know in order to accelerate the development, evaluation, translation, implementation, and scaling up of comprehensive care, services, and supports for persons with dementia, families, and other caregivers. The summit is focused on research that is needed to improve quality of care and outcomes across care settings, including quality of life and the lived experience of persons with dementia and their caregivers.



  • Improve the quality of care and support provided to persons with dementia and their caregivers.
  • Accelerate the development, evaluation, translation, implementation and scaling up of evidence-based and evidence-informed services for individuals with dementia, their family and caregivers.
  • Understand and ameliorate the current disparity in available resources for people with dementia and their families.


HHS, Assistant Secretary for Planning and Evaluation Website


Summit Agenda*

Plenary:  Demographics of Dementia and Dementia Caregiving
Session I:  Research on Care Needs and Supportive Approaches for Persons with Dementia
Session II:  Research on Supportive Approaches for Family and Other Caregivers
Session III:  Involving Persons with Dementia and Family and Other Caregivers as Active Members of the Research Team to Identify Research Topics and Meaningful Outcomes
Session IV:  Research on Care Coordination and Care Management for Persons with Dementia and Family Caregivers
Session V:  Challenges in Involving Persons with Dementia as Study Participants in Research on Care and Services
Session VI:  Research on Translation, Dissemination, Implementation, and Scaling Up of Effective Care, Services, and Supportive Approaches for Persons with Dementia and Family and Other Caregivers

*Subject to change


Dinetta Parrott, Development Officer,