2019 Alzheimer's Disease-Related Dementia (ADRD) Summit

Dementia impacts approximately 50 million people worldwide today. Alzheimer’s Disease alone currently affects more than 5 million people in the U.S. and is now the sixth leading cause of death in the United States. Frontotemporal Degeneration, another dementia disorder, is the leading cause of dementia in people under the age of 60. Lewy Body Dementia affects more than 1 million Americans. There are currently no known treatments to prevent the onset and progression of any of these forms of dementia.

The National Institutes of Health (NIH) convened the 3rd Alzheimer's Disease-Related Dementia Summit, that was held on March 14-15, 2019 in Bethesda, Maryland. The program built on the foundation laid by the 2013 and 2016 NIH ADRD Summits, and the U.S. National Alzheimer’s Project Act (NAPA)/National Plan to Address Alzheimer's Disease. Its central goal was to continue the development of an integrated multidisciplinary research agenda necessary to address critical knowledge gaps and accelerate the discovery and delivery of efficacious treatments for dementia patients at all stages of disease. The Summit reviewed progress made on the 2016 Alzheimer's Disease-Related Dementia research recommendations and refine research based on new scientific discoveries.

The 2019 Summit brought together leading researchers, innovators and public advocates from academia, industry, the non-profit sector and NIH. The program featured progress made toward achieving the National Plan’s research goal to Treat and Prevent Alzheimer’s by 2025, as well as a robust discussion on the continued transformation of the process of dementia research and drug development into one that is participatory, collaborative, well-integrated and capable of delivering the cures that are so desperately needed.

Review the 2019 Summit Agenda here.

Program Goals

  • Review advances made in Alzheimer's and related dementia research
  • Refine the recommendations made at the 2016 ADRD Summit
  • Develop new recommendations on the research and resources that are needed to foster new scientific discoveries

Learn about the ADRD Summit here.

Partners

Public-Sector Partners:
National Institute of Neurological Diseases and Stroke (NINDS)
National Institute on Aging (NIA)

Private-Sector Partners:
Alzheimer's Association*
Alzheimer's Drug Discovery Foundation*
Accelerate Cure/Treatments for Alzheimer's Disease (ACT-AD) Coalition*
American Stroke Association, a division of the American Heart Association*
Biogen*
CurePSP*
EIP Pharma*
GHR Foundation*
Home Instead Senior Care*
The John A. Hartford Foundation*
WellMed Charitable Foundation*

*Provided financial or in-kind support for this program.

FNIH Contact

Shawn Stern, Development Associate, sstern@fnih.org.