2020 National Research Summit on Care, Services & Supports for Persons with Dementia and their Caregivers

The National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers has been cancelled due to COVID-19. Please refer to this message from Dr. Richard J. Hodes, Director of the National Institute on Aging, for more information.

Alzheimer’s disease (AD) and related dementias continue to grow at an overwhelming rate in the Unites States. Recent estimates indicate that AD is the sixth leading cause of death for persons over the age of 65. Caring for an individual with AD or related dementia can have high physical, emotional, and financial costs for the individual, family members, and other caregivers. Frequently, people with dementia and their caregivers need access to a wide range of resources to ensure proper care and maximize quality of life. To address the growing need for evidence that improves the type and quality of care and support provided to persons with dementia and their caregivers, the National Institute on Aging (NIA) is hosting its 2nd National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers on March 24-25, 2020. The decision has been made to hold the event via videocast due to coronavirus. While the decision to alter the format of the program was difficult, it is in line with guidance from the Office of Personnel Management to strengthen efforts to protect the federal workforce to ensure continuity of operations and consider alternate options for large meetings occurring over the next 30 days.

The Summit will build on the foundation laid by the 2017 National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers. This 2020 Summit aims to expand upon what was learned in the previous summit and spark new innovative ideas from those living with dementia, caregivers, researchers, providers, and advocates. The primary anticipated outcome of the 2020 Summit is a set of recommendations for research priorities that will inform the field broadly, including federal agencies, foundations, and private sector organizations.

Through the Summit, the NIA seeks to accelerate the development, evaluation, translation, implementation, and scaling up of evidence-based and evidence-informed services for individuals with dementia, their family and caregivers. The Summit will bring together experts in research on care, services, and supports in order to develop recommendations for research that will inform annual updates to the National Plan to Address Alzheimer’s Disease and advance public and private sector delivery of services.

Goals

Bring together individuals with a variety of backgrounds to identify evidence-based programs, strategies, approaches, and other research that can be used to improve the care, services, and supports of persons with dementia and their caregivers.

Read the overview of the National Research Summit

Partners

Public-Sector Partners:
National Institute on Aging

Private-Sector Partners:
Alzheimer's Association*
The Association for Frontotemporal Degeneration*
Home Instead Senior Care*
The Shiley Foundation*

*Provides funding or in-kind support for this program.

FNIH Contact

Joanne Morse, Senior Development Officer, jmorse@fnih.org